Family Tool Kit

When Pediatric Stroke Warriors (PSW) closed their doors in 2020, they graciously entrusted IAPS to update, maintain, and distribute their PSW Family Tool Kit. After much hard work by board members, specialists, and doctors in the pediatric stroke community, the edited IAPS Pediatric Stroke Family Tool Kit was created in early 2021. Because of a generous grant from PSW, printed books were offered at no cost and we shipped out 700 copies during 2021! In 2022, because of our wonderful donors, we are able to continue sending these guide books at no cost to families, clinics, hospitals, and medical providers! Over 800 books have been shipped out in 2022!

Due to high demand, we had more books printed in October 2022. For everyone that pre-ordered these, they were shipped out in early November. If you missed out on the October 2022 pre-order, we will have limited quantities available for hospitals, clinics, and medical providers. Please use this Order Form to request printed copies. Currently we are only able to ship within the U.S. and limited quantities to Canada. However, it is permissible to print pages from our online version.

Our parents/caregivers will continue to be our priority, so we encourage families to order a printed book to help guide them on the journey after pediatric stroke. Please use this Order Form and we will get them mailed to you.

SPANISH PRINTED COPIES ARE AVAILABLE IN LIMITED QUANTITIES!! We had the IAPS Pediatric Stroke Family Tool Kit translated to Spanish in 2021. In July 2022 we shipped out over 450 printed copies of the Spanish books! If you missed out on this order, we will offer very limited quantities over the next few months. Please use this order form: Spanish Order Form.

While anyone impacted by stroke would benefit from this Tool Kit, we recommend printed copies for the following audiences:

  • If you have a newly diagnosed child and want a guide for starting on this journey
  • Hospitals who’d like to send home a copy with their pediatric stroke families
  • Clinics, doctors, therapists who have pediatric stroke patients
  • Families that prefer to have a hard copy rather than look online

Both the English and Spanish Tool Kit books are always available to download and to read through on our website as a “flip book”.

If you’re a family impacted by pediatric stroke and are interested in one-on-one support, we encourage you to also take advantage of our IAPS Support Network. This network is made up of support specialists — parents of children, teens, and young adults who have had a stroke as a baby or child, who are ready to share their lived experiences and resources. We match you to a specialist based on type of stroke, age of child, location, medical conditions, or specific issues. We are here so you don’t have to walk on this journey alone! Please note, everyone who contacts us through the Support Network will automatically be sent our hard copy Tool Kit book.

 

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