Family Tool Kit

When Pediatric Stroke Warriors (PSW) closed their doors in 2020, they graciously entrusted IAPS to update, maintain, and distribute their PSW Family Tool Kit. After much hard work by board members, specialists, and doctors in the pediatric stroke community, the edited IAPS Pediatric Stroke Family Tool Kit was created in early 2021. Because of a generous grant from PSW, printed books were offered at no cost and we shipped out 700 copies during 2021! In 2022, we have already printed and shipped out over 500 copies to families, clinics, hospitals, and medical providers!

We had requests from so many families, hospitals, and doctors, we will be printing more books in September 2022! If you are a hospital, clinic or medical provider needing copies for your patients, please fill out our Order Form and we will get them shipped to you in late September.

Our parents/caregivers will continue to be our priority, so we encourage families to order a printed book to help guide them on the journey after pediatric stroke. Please use this Order Form and we will get them mailed to you.

SPANISH PRINTED COPIES NOW AVAILABLE IN LIMITED QUANTITIES!! We had the IAPS Pediatric Stroke Family Tool Kit translated to Spanish in 2021. In July 2022 we shipped out over 450 printed copies of the Spanish books! If you missed out on this order, we will offer limited quantities over the next few months. Please use this order form: Spanish Order Form.

While anyone impacted by stroke would benefit from this Tool Kit, we recommend printed copies for the following audiences:

  • If you have a newly diagnosed child and want a guide for starting on this journey
  • Hospitals who’d like to send home a copy with their pediatric stroke families
  • Clinics, doctors, therapists who have pediatric stroke patients
  • Families that prefer to have a hard copy rather than look online

Both the English and Spanish Tool Kit books are always available to download and to read through on our website as a “flip book”.

If you’re a family impacted by pediatric stroke and are interested in one-on-one support, we encourage you to also take advantage of our IAPS Support Network. This network is made up of support specialists — parents of children, teens, and young adults who have had a stroke as a baby or child, who are ready to share their lived experiences and resources. We match you to a specialist based on type of stroke, age of child, location, medical conditions, or specific issues. We are here so you don’t have to walk on this journey alone! Please note, everyone who contacts us through the Support Network will automatically be sent our hard copy Tool Kit book.

 

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