Once again, the International Alliance for Pediatric Stroke  partnered with the American Heart Association to produce two new fact sheets. Please share and distribute these widely to educate and raise awareness that strokes can happen in babies, children and teens!
This infographic was co-produced by the International Alliance for Pediatric Stroke and the American Heart Association/American Stroke Association to outline the risk factors and important signs and symptoms of pediatric stroke. It is also available in Spanish and Portuguese.
The following three pediatric stroke educational materials were funded through a quality improvement grant from the North Carolina Stroke Care Collaborative. The International Alliance for Pediatric Stroke collaborated with the Project for Expansion of Education in Pediatric Stroke (PEEPS) Committee to create these useful resources. Thank you to the pediatric stroke families who provided pictures and quotes!
In addition to the three resources above, the Carolina Acute Stroke Training (CAST) now has a Pediatric Stroke Module (Module 9). The Carolina Acute Stroke Training (CAST) program was developed by the UNC Stroke Team under the leadership of Susan Wilson RN, MSN, C-ANP. Learners for CAST include registered nurses, first responders, pharmacists, allied health professionals, and a wide variety of persons with different backgrounds, education and experience.
Each module ends with a “Completion Certificate” which indicates learning hours for a wide range of learners. The learning hours include time for reviewing the module, discussing it with colleagues, and reviewing additional resources. There is no cost to register to complete the modules. However, for anyone needing accredited continuing education, there is a nominal $29 registration fee and includes completing all the modules.
International Alliance for Pediatric Stroke Newsletters
Issue 1 April 2016, Special Edition May 2016, Issue 3 June 2016, Issue 4 October 2016, Issue 5 April 2017, Issue 6 September 2017, Issue 7 December 2017, Issue 8 April 2018, Issue 9 June 2018, Issue 10 August 2018, Issue 11 October 2018, Issue 12 February 2019, Issue 13 April 2019
Pediatric Stroke Campaign Website 
For the past two years we have sponsored a website for Stroke Awareness Month in May and World Stroke Day on October 29th. You can view our campaign for World Stroke Day 2018 here
The book is designed to enhance the practice of all health care providers, enrich discussion, and emphasize the interdisciplinary nature of managing best outcomes for a child who has had a stroke. Evidence-based practice is threaded throughout the text with an emphasis on recovery vs. compensation, goal achievement, and outcome measurement. Two International Alliance for Pediatric Stroke board members are contributing authors, Dr. Adam Kirton and Mary Kay Ballasiotes.
Parents, caregivers and family members of children who have had a stroke will also find this book to be a valuable resource. The publishers, SLACK Inc., have agreed to offer a discount to families who would like to purchase the book. Here are the details:
  • URL:
  • Promo Code: PSR17
  • The promo code will take 20% off the retail price. The promo code is only valid on the healio website or by calling the customer service department at 1-800-257-8290.
The revised Stroke Rehabilitation recommendations are published in the International Journal of Stroke and are part of the fifth edition of the Heart and Stroke Foundation Canadian Stroke Best Practice Recommendations. The 2015 update of the Canadian Stroke Best Practice Recommendations (CSBPR) Stroke Rehabilitation recommendations continue to emphasize specialized stroke care provided by an interdisciplinary team, and the inclusion of the patient and caregiver(s) as an important part of the rehabilitation team. This year, a section specific to pediatric stroke has been included. Scroll to page 478 for the start of the pediatric section.
This guide was published through Canadian Stroke Best Practices/Heart and Stroke Foundation of Canada. It is designed to provide basic information about stroke and stroke care to families of children who have had a stroke. It is an educational resource based on the Canadian Stroke Best Practice Recommendations for Stroke Care (2010), current research and expert opinion. Research about stroke in children and babies is still developing; much of the information in this guide comes from stroke experts and from families who have experienced childhood stroke and are sharing their stories.
The PDF is accessible online, however, hard copies are available at no charge for individuals, physicians and hospitals. The information is applicable to pediatric stroke anywhere in the world. Please contact Dr. Patrice Lindsay at or 647-528-4361 for more information or to obtain copies.
This clinical guideline was developed in response to the needs of professionals and families for a consistent approach to childhood stroke in Australia. It includes more than 60 recommendations to help emergency staff and paediatricians in diagnosing and managing children with stroke upon arrival to hospital.
The guideline was developed by the Australian Childhood Stroke Advisory Committee (ACSAC), comprising Australia’s leading clinical experts, scientists and guideline developers, representing all of Australia’s leading tertiary paediatric centres.
Childhood Stroke Resources, from The Stroke Association in the UK
This website includes: Childhood Stroke Information, an expansive Toolkit Information Guide, Resources to support young people, families and professionals.
The Canadian Heart & Stroke 2017 Stroke Report looks at the stroke recovery journey across the ages, highlighting common challenges and issues that occur at specific life stages: babies and children, younger adults and older adults. It examines the essential role of the family caregiver, highlights the importance of placing the patient and family at the center of care, and identifies areas where system improvements could support the changing profile and needs of people who experience stroke.
In this video, Dr. Mia Bernson-Leung from the Boston Children's Hospital Stroke and Cerebrovascular Center, discusses pediatric stroke and its signs and symptoms, diagnosis, treatment and occurence rates. Initial publication, August 1, 2018.
The World Stroke Organization compiled testimonials of people with lived experience of stroke from across the world in an ebook. Many children have been included.
This pediatric stroke fact sheet was published by the American Heart Association/American Stroke Association in 2009. It was vetted by the AHA/ASA’s scientific advisory board and has been updated every year through 2015.
Information for cardiovascular diseases in youth published by the American Heart Association/American Stroke Association.

Let's Talk About Children and Stroke 
A fact sheet from the American Heart Association/American Stroke Association which includes information on hemorrhagic and ischemic strokes in children.

A fact sheet from The Stroke Association, the UK's leading stroke charity.
Under the leadership of Dr. Patti Lindsay, (IAPS board member) the WSO SSO Committee has collected a list of patient and public educational materials that has been submitted by various partner and member organizations. Each list is searchable by different category for your convenience.
Dr. Heather Fullerton, a pediatric vascular neurologist at UCSF, discusses stroke in children, the causes, and the generally optimistic recovery path with Bill Monroe on StrokeCast.
Stimulating the brains of pediatric stroke survivors
In this TED talk, graduate student Brandon Craig at the University of Calgary, discusses the potential of using brain stimulation to help kids rehabilitate from the injuries caused from perinatal stroke. 
Podcast with Dr. Gabrielle deVeber
Discussion on "Pediatric stroke: pressing issues and promising directions".
Scroll down to Related Audio on the bottom right of the page to hear the podcast.
Dr. Rebecca Ichord of Children's Hospital of Philadelphia, explains the signs and symptoms of pediatric stroke and demonstrates an exam.
This book, published through HemiHelp in the U.K., is a detailed overview of hemiplegia covering a wide range of aspects from its causes to information on how to support a child affected by hemiplegia. Practically oriented, the Hemiplegia Handbook aims to be a useful guide for both parents and professionals. It costs £5.00 to ship outside of the UK in Europe and £10.00 to ship to countries outside of Europe. For international purchases please contact the office before making your order 0845 120 3713 or email
Congenital Hemiplegia 
This is a comprehensive review of congenital hemiplegia for the clinician covering all aspects from etiology and pathology to clinical assessment and management, whether orthopaedic, neurological or psychological. Available in the UK and also from Amazon in the U.S.
A Guide for Occupational Therapy and Health Care Clinicians, Researchers, and Educators.
Roberto D'Angelo and Francesca Fedeli talk about their son Mario's perinatal stroke and mirror neuron rehabilitation during a TEDGlobal talk in 2013.
Lotta e sorridi (Smile and Keep up the Fight)
A story about love and science by Francesca Fedeli.
The moving story of two parents faced with what parents fear the most -- their child's illness -- and turning it into an amazing opportunity. The book is written in Italian and Ms. Fedeli is looking for a publisher to translate it to English. The English excerpt can be found here. The book is available on Amazon.
This book tells the story of how a mother drew inspiration from her childhood heroes and applied seemingly unrelated life experiences, like working as a flight attendant and learning to play the piano, to helping her daughter overcome the effects of a childhood stroke. And, within the struggles, how she ultimately found a sense of healing, realizing that even the most difficult situations can eventually bring something positive. To read an excerpt, click here. Available internationally through 
The “Mimi” Books are based on a mother’s own experience helping her daughter. They feature a young girl who is just like everyone else except that as a baby, she suffered a stroke. For children facing the challenges of physical rehabilitation, the stories show children how someone much like themselves deals with the kinds of challenges they are likely to face in the early years of their lives. Read more about the book here.
“Mimi Learns to Walk” is the first book of the series.
Available internationally through in English. Also available in French through
I See You, Little Naomi 
Meet Naomi and get to know about her unique life because of a boo-boo that others can't see. A survivor of pediatric stroke, her story will introduce children to the world of special needs and that it's okay to be curious about others who may look or act differently. Children will learn compassion and love by understanding the reasons why some people may need extra help doing the same things they do.
The Boy Who Could Run But Not Walk 
In this groundbreaking book, Dr. Karen Pape tells the story of how some children with early brain damage astounded everyone around them. The brain injury they suffered at or near birth had led to motor problems such as the awkward gait we associate with cerebral palsy. Yet they were able to run, kick a soccer ball, tap dance, and play tennis.

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